Café des Sciences #98 in Collaboration with the Café des Entrepreneurs: "Focus on rare diseases"

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- When : Wednesday, April 10
- Where : Sarepta, 215 First Street, Cambridge, MA 02142
- Registration
- Presentation in French

 

Guest

Founder and CEO of Lysogene, Ms. Karen Aiach is also the mother of a child with MPS IIIA. She has a strong business background starting her career with Arthur Andersen specializing in audit and transaction services. Her entrepreneurial experience includes founding and running a financial business consultancy. From 2008 to 2009, Ms. Aiach served as a Member of the Pediatric Committee at the European Medicines Agency (EMA), established in accordance with the European Pediatric Regulation, as a patient representative. In 2008, she also served on the French Ethical Review Board CCPPRB at Ambroise Paré Hospital. Ms. Aiach has been involved with several not-for-profit organizations engaged in advocacy and research in the field of rare diseases such as Alliance Sanfilippo and Eurordis, where she served on the board as treasurer from 2010 to 2011. She is a founding executive member of the International Rare Diseases Research Consortium (IRDiRC).

 
 
 
 

Presentation

In this 98th edition of the Café des Sciences, Karen will present her experience as a mother of a child with a rare genetic disease and as an entrepreneur. She will discuss Lysogene’s development strategy, focusing on neurologically-involved diseases and their clinical programs targeting neuropathic lysosomal storage disorders, particularly interesting candidates for gene therapy. She will share how the company has built itself on a global understanding of the impact of neurodegenerative diseases on patients and their families.

 

Program

18h00: Welcome
18h15: Pitch of French start-ups
18h30: Presentation
19h00: Q&A
19h15: Networking

 

Partners of the Café des Sciences

For more information: https://cafesciences.org/